By  John L. Micek

Victoria Schiano’s son, Cole, is five-and-a-half. And he’s enduring what no kid his age should ever be asked to endure.

He has mitochondrial disease, lives with a central line to his heart, and has a feeding tube connected to his stomach and his intestines. He also needs constant monitoring for his seizure disorder. He has anxiety. And he’s on the autism spectrum.

Schiano, of Downingtown, Pa., is her son’s primary caregiver. And that’s made it hard ...